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National Quality of Life Survey launched for Cancer Patients

21/12/20

National Quality of Life Survey launched for Cancer Patients

Public Health England, NHS England and NHS Improvement are leading the way in cancer care by recognising that quality of life (QoL) outcomes are as important to patients as survival. This year, they have launched a nationwide QoL survey.

Initially they will survey people who have been diagnosed with breast, prostate or colorectal cancer. People with all other cancer types will be included from 2021 onwards.

People will be a sent a survey 18 months after their diagnosis to assess their QoL. The information collected from the survey will be used to work out how best to support the growing number of people living with and beyond cancer.

This is an ambitious programme with a scale and depth that isn’t being matched anywhere else in the world.

Although patient reported outcome measures (PROMs) that focus on QoL are in use in parts of the NHS, and in clinical trials round the world, the potential for PROMs to improve care and outcomes for people affected by cancer has not yet been realised. Only by monitoring QoL, using a consistent assessment point with nationwide coverage, can data be made available to help improve care across the NHS.

For the first time, this survey will routinely measure QoL outcomes in a way that influences health policy, professional practice and patient empowerment.

We want to encourage as many people as possible to complete their survey so that the information collected fully represents our cancer population.

An experienced patient survey company (Quality Health) is managing the survey invite and response system. All the survey responses are being held securely by the Cancer Registry at Public Health England. The Cancer Registry are linking the survey responses with existing data related to each person’s diagnosis and treatment.

Eligible patients will receive a direct invitation to complete the QoL survey online. The survey is easy to complete and generally takes between five and 10 minutes.

The survey asks about how people are doing. People’s answers can be related to their cancer diagnosis and treatment, other illnesses, or other things happening in their life.

The survey company (Quality Health) is managing a website  and free helpline 0800 783 1775 to support patients to complete the survey and respond to any queries or difficulties. There is also a patient leaflet you can download and print

The results of this survey will be analysed by Public Health England. National and regional level reports will start to be made available in the Autumn, 2021.

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